MS MobilityStrength Multiple Sclerosis

MS MobilityStrength Multiple Sclerosis
As a person with MS, I bring a personal commitment to the work I do.

Tuesday, October 22, 2013

MS is always on my mind!


MS, you're always on my mind,
 can't seem to get you out of my head!
I close my eyes to sleep you are in my dreams,
then open my eyes to start a new day, 
and you are right there with me being unkind. 
MS, I never thought you'd be part of my life
and I won't change for you.
I don't like the way you make me feel,
anxious, dependent, emotional, strife. 



I guess that's why you're always on my mind.  


 I can't stop thinking about you morning, 
noon and night.
I might be walking in the store looking this way and that, getting dizzy, will I lose my balance and fall?
The numbness, tingling of my hands and feet
and the spasms of my body are not my favorite.
The hot or the cold,
you never seem happy.
Daylight or darkness,
you play tricks with my sight.
Walking or sitting,
my head could be spinning.
Slowly my body is changing for you,
won't you agree?

I guess that's why you're always on my mind.


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Friday, October 18, 2013

The Spoon Theory

The Spoon Theory

This is a story of a woman with MS trying to explain what it is like to have this disease to a friend of hers

I thought I would share it with you.............

"But You Don't Look Sick"....

My best friend and I were in the diner talking. As usual, it was very late and we were eating French Fries with gravy. Like normal girls our age, we spend a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time.

We never got serious about anything in particular and spend most of our time laughing.

As I went to take some of my vitamins with a snack as I usually did, she watched me this time with a kind of start, instead of continuing the conversation. She then asked me out of the blue what it felt like to have MS and be sick.

I was shocked, not only because she asked the random question but also, I assumed she knew all there was to know about MS.

She had come to the doctors with me, seen me getting MRI's, she saw me stumble on sidewalks and have to sit down at a concert. She carried me out when I couldn't walk another step, what else was there to know?

I started to ramble on about the vitamins and the changes but she didn't seem satisfied with my answers. I was a little surprised as being my roommate and friend for years; I thought she already knew the medical definition of MS.

Then she looked at me with a face every sick person knows well, the face of pure curiosity about something no healthy person can truly understand. She asked what it felt like, not physically, but what it felt like to me...having MS.

As I tried to gain my composure, I glanced around the table for help or guidance, or at least a stall. I was trying to find the right words. How do I answer a question I never was able to answer for myself? How do I explain every detail of every day being effected, and give the emotions a person with MS goes through every day with clarity?

I could have given up and cracked a joke like I usually do, and changed the subject, but I remember thinking if I don't try to explain this, how could I ever expect her to understand? If I can't explain this to my best friend, how could I explain my world to anyone else? I had to at least try.

At that moment, the spoon theory was born. I quickly grabbed every spoon on the table; hell I grabbed spoons off of the other tables.

I looked her in the eyes and said, " Here you go, you have MS." She looked at me slightly confused, as anyone would when they are being handed a bouquet of spoons.

The cold metal spoons clanked together as I shoved them into her hands. I explained that the difference between having MS and being healthy is having to make choices, or to think consciously about things when the rest of the world doesn't have to. The healthy have the luxury of choice, a gift most people take for granted.

Most people start the day with an unlimited amount of possibilities, and energy to do whatever they desire, especially young people. For the most part, they do not need to worry about the effects their actions will have. So for my explanation, I used spoons to convey this point. I wanted something for her to actually hold, for me to take away, since most people who get MS feel the "loss" of a life they once knew.

If I was in control of taking away the spoons, then she would know what it feels like to have someone or something else, in this case MS, in control.

She grabbed the spoons with excitement. She didn't understand what I was doing, but she is always up for a good time. Little did she know how serious the game would become.

I asked her to count the spoons. She asked why, and I explained that the spoons represented units of energy and when you are healthy you expect to have a never-ending supply of spoons.

But when you have MS and you have to plan your day, you need to know exactly how many spoons you are starting with. It doesn't guarantee you might not lose some along the way, but at least it helps to know where you are starting. She counted out 12 spoons. She laughed and said she wanted more. I said no, and I knew right away that this little game would work, when she looked disappointed, and we hadn't even started the game yet.

I've wanted more spoons for years and haven't found a way yet to get more, why should she? I also told her to always be conscious of how many she had, and not to drop them because she can never forget she has MS.

I asked her to list off her day, including the most simple tasks. As she rattled off daily chores, or just fun things to do I explained how each one would cost her a spoon. When she jumped right into getting ready for work as her first task of the morning, I cut her off and took away a spoon.

I practically jumped down her throat. I said, "no, you don't just get up. You have to crack your eyes open and then realize you are late. You didn't sleep well the night before. You have to crawl out of bed, and you have to make yourself something to eat before you do anything else because you have to take your vitamins and have energy for the day and if not you might as well give up on spoons for the whole day!"

I quickly took away a spoon and she realized she hasn't even gotten dressed yet.

Showering cost her another spoon, just washing her hair and shaving her legs. Reaching too high or low, or having the shower water too hot and choosing to blow dry her hair would have cost more than one spoon but I didn't want to scare her too much in the beginning.

Getting dressed is worth another spoon. I stopped her and broke down every task to show her how every detail needs to be thought about. You have to see what clothes you can physically put on, what shoes are going to be appropriate for the days walking requirements, if pain or spacticity is a problem, buttons are out. If I have bruising from my medication, long sleeves might be in order.

You cannot simply throw clothes on when you have MS...its just not that easy.

I think she started to understand when she theoretically didn't even get to work yet and she was left with 6 spoons. I then explained to her that she needed to choose the rest of her day wisely, since when your spoons are gone, they are gone.

Sometimes you can borrow against tomorrow's spoons but just think how hard tomorrow will be with less spoons. I also needed to explain that a person who has MS lives with the looming thought that tomorrow may be the day that a fever comes, or an infection, or any number of things that could prove disabling.

So you do not want to run low on spoons, because you never know when you truly will need them. I didn't want to depress her, but I needed to be realistic, and unfortunately being prepared for the worst is part of the real day for me.

We went through the rest of the day, and she slowly learned that skipping lunch would cost her a spoon, as well as standing on a train, or even typing on her computer for too long. She was forced to make choices and to think about things differently.

Hypothetically, she had to choose not to run errands, so that she could eat dinner that night.

When we got to the end of her pretend day, she said she was hungry. I summarized that she had to eat dinner but she only had two spoons left. If she cooked, she wouldn't have enough energy to clean the pots.

If she went out to dinner, she might be too tired to drive home safely without having blurred vision or forgetting to turn her lights on. So she decided to make soup, it was easy. I then said it is only 7pm, you have the rest of the night but maybe end up with one spoon, so you can do something fun, or clean your apartment, or do chores but you can't do it all.

I rarely see her emotional, so when I saw her upset I knew maybe I was getting through to her. I didn't want my friend to be upset, but at the same time I was happy to think maybe finally someone understood me a little bit. She had tears in her eyes and asked quietly, "Christine, how do you do it? Do you really do this everyday?"

I answered that some days were worse than others , some days I have more spoons than most. But I can never make it go away and I can't ever for a minute forget about it, I always have to think about it. I handed her a spoon I had been holding on reserve. I said simply, "I have learned to live life with an extra spoon in my pocket, in reserve, you need to always be prepared."

It's hard, the hardest thing I ever had to learn is to slow down, and not to do everything. I fight this very day. I hate feeling left out, having to choose to stay home, or to not get things done that I want to. I wanted her to feel the frustration. I wanted her to understand that everything everyone else does comes so easy, but for me it is one hundred little jobs in one.

I need to think about the weather and my own body before I can attack any one thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It is in that lifestyle, the difference between having a chronic illness and being healthy. It is the beautiful ability to not think and just do. I miss that freedom.

I miss never having to count my spoons.

After we were emotional and talked about this for a while longer, I sensed she was sad. Maybe she finally understood. Maybe she realized that she never could truly and honestly say she understands.

But at least now she might not complain so much when I can't go out for dinner some nights, or when I never seem to make it to her house and she always has to drive to mine. I gave her a hug and we walked out of the diner. I had one spoon in my hand and I said, "Don't worry.

I see this as a blessing. I have been forced to think about everything I do. Do you know how many spoons people waste every day? I don't have room to waste them, and I choose to spend this time with you."

Ever since this night, I have used the spoon theory to explain my life to many people. In fact, my family and friends refer to spoons all the time. It has been a code word for what I can and cannot do.

Once people understand the spoon theory they seem to understand me better, but I also think they look at their own life a little differently. I think it isn't just good for understanding MS, but anyone dealing with any disability or illness.

Hopefully, they don't take so much for granted or their life in general. I give a piece of myself, in every sense of the words, every time I do anything. It has become an inside joke. I have become famous for saying to people jokingly that they should feel special when I spend time with them, because they have one of my spoons.

Thursday, October 17, 2013

Stress is Bad for MS

 

Life's Stresses are Not Good for Multiple Sclerosis (MS) 


  My husband and I have been experiencing the effects of the partial government shutdown. I am on disability and am not able to work. These past few days I have been experiencing more than normal dizziness.
Balance problems, dizziness, and incoordination are common problems in people with multiple sclerosis (MS) which can be brought on by added stress.
 
  We are hoping for a resolution for now and just waiting to see what happens in January/February. Will there be another shutdown? 


Thank you for your interest in my blog.

Also visit my website:

 MS MobilityStrength Multiple Sclerosis 

Wednesday, June 12, 2013

Tesorito

Have you heard the term Tesorito? Well this means 'little treasure'.

I have a Tesorito, my granddaughter Olivia Grace.

Going to visit my grandbaby was a much needed break from the daily grip of MS. Sure my MS still let me know that it was around but Olivia filled every minute of every day placing MS on the back burner. My trip was to Pooler GA, near Savannah. I was visiting at the perfect time of year, April & May. Temperatures were mild and comfortable. I really enjoyed the walks on the beach at Tybee.

Olivia and Nana


I was really suprised that I wasn't bothered that much with MS symptoms. I had my usual balance and fatigue issues but they weren't that bothersom.
I miss my Tesorito!

Thursday, February 28, 2013

MS Educational Series

   MS Active Source is helping you live well with MS with their ongoing MS educational series.

MS ActiveSource is a registered trademark of Biogen Idec.
Helping you live well with MS
   I attended a program on Wednesday, February 27,2013 entitled Find answers to your relapsing MS questions & learn more about a relapsing MS treatment. This therapy was Tysabri. 
    I am currently using Avonex and am very happy with this MS therapy. 
    The scheduled neurologist discussed Understanding the benefits and the risks of Tysabri and the risk of PML.
    We also heard from an MS advocate about her journey with MS. Most everything she spoke of I could relate to. I also learned how she handled her obstacles. 
    I have had the opportunity to attend these Ongoing MS Educational Series. These educational events can help you 

  • Get the latest news and tips on healthy living from experts in MS treatment
  • Share insights with others living with MS
  • Participate in live Q&A sessions
 This free program can help you achieve some of your goals for living will with MS.

To learn more visit: MS ActiveSource  Search for MS ActiveSource in search box at top of  Biogen Idec page.


Questions about PML or TYSABRI?  Click here for Information Look under therapies for Tysabri and click.

Visit my website:  MS MobilityStrength Multiple Sclerosis
Become a member and be added to the email list for updates.

       

Tuesday, February 12, 2013

Struggling With MS-related Fatigue

Morning, Noon and Night I struggle with Fatigue a common symptom of MS.


Fatigue



Fatigue in Multiple Sclerosis

Fatigue is the most common symptom of multiple sclerosis (MS). It occurs in 75 percent to 95 percent of patients with MS. Fatigue can occur at all stages of the disease. The symptom is not related to the severity or to the duration of MS. At times, fatigue interferes with function and is an important symptom to manage. There are a variety of ways to combat fatigue in MS.

What causes fatigue in patients with multiple sclerosis?

The exact cause of MS-related fatigue is still unknown. There are several theories on the subject:
  • One theory is that fatigue is related to the general activation of the immune system. Chemical messengers are called cytokines; these levels are higher in patients with MS and may be higher still in patients with fatigue. One way of describing this is that you may feel like you have a virus all of the time.
  • Another theory is that people with MS may have to use more parts of their brain to do the same task as someone without MS; in essence, they are working harder.
  • Another theory is that fatigue is related to reduced electrical transmission of signals in the brain.
Whatever the theory, we know that fatigue from MS is a very real part of the disease.

What are symptoms of fatigue?

There are two major types of fatigue in MS. These two types of fatigue are probably separate problems related to the MS.
The first type is a general feeling of tiredness. It may feel as if one has not slept the night before. This feeling may be worse in the afternoons or after activity. People may feel that they are unable to do as many tasks without getting tired as they did before.
A second type of fatigue is muscular. In this type, there is increased weakness after repeated activity. Often, this occurs with walking. People may find that they are dragging one leg or are more unsteady.

Are there other causes of fatigue besides the MS?

Obviously, people with MS can be tired for other reasons. For example, they may have sleep disorders that interfere with restful sleep. People with MS may have a condition called restless leg syndrome, where they feel that they have to move their legs to get relief. They may also have periodic leg movements, which is when legs kick involuntarily during sleep. Another condition affecting sleep is sleep apnea, which is also common among the general population.
Certain medications may affect sleep or cause fatigue. Alcohol or drug use may alter sleep or cause drowsiness. Sometimes, people have other medical conditions, such as infections, anemia, or a reduced thyroid function, which can increase fatigue.

Are there non-medical treatments for MS-related fatigue?

There are non-medical treatments for fatigue related to MS:
  • A number of studies have shown that regular exercise, usually with some aerobic (cardiovascular) component, helps with MS-related fatigue. Regular exercise is also good for balance, endurance, weight loss, and well-being.
  • It is important to use the principle of energy conservation. For example, you can use "the best time of the day" by shopping in the morning and resting in the afternoon. A brief nap may be very helpful to recharge your batteries.
  • Avoid over-filling your day.
  • If you are taking medications that are causing fatigue, discuss these with your doctor; together, you and your doctor may consider reducing or eliminating these drugs.
  • If you are drinking too much or abusing drugs, consider working on stopping these behaviors.
  • Some patients are heat sensitive and have more fatigue when they are in a hot environment or are over-heated. Having air conditioning in the summer may be very helpful. Some people may also find cooling vests to be useful.

What are some medical treatments for MS-related fatigue?

In general, if possible, it is good to avoid using medications. People with MS often take several medications. Limiting the number of medicines is good medical practice. It is also important in reducing costs. However, if fatigue continues to interfere with activities, medications may be useful. These medications may include:
  • Aspirin: A recent well-designed study showed that two regular (325 mg each) aspirins taken twice a day significantly reduced MS-related fatigue and was preferred by patients over placebo. Aspirin is inexpensive and readily available over the counter. However, some people are sensitive to aspirin, and others may find it causes stomach ulcers. A trial of aspirin therapy for fatigue may be a reasonable first step in medication management. Usually, the effect can be seen after a month or two. The cost runs about $4 per month.
  • Amantadine: Amantadine (Symmetrel®) is an antiviral medication that has been used in a number of studies in MS-related cases. The drug’s effect is moderate, and side effects for some people may include nausea or a skin rash. Amantadine is given as an oral dose of 100 mg twice a day, usually in the morning and again at mid-day. One to two months is long enough to get a sense of how well this medicine is working. The cost runs about $30 to $60 per month.
  • Modafinil: Modafinil (Provigil®) is a medication which has been approved by the US Food and Drug Administration to treat a sleep disorder called narcolepsy. Two studies have been done to test modafinil in treating patients with MS. One study showed a significant effect on fatigue, but the other did not. This medication costs about $150 to $200 per month. It may not be covered by prescription plans.
©Copyright 1995-2009 The Cleveland Clinic Foundation. All rights reserved.
Can't find the health information you’re looking for?
This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. For additional written health information, please contact the Health Information Center at the Cleveland Clinic  216.444.3771 or toll-free  800.223.2273 extension 4-3771 or visit www.clevelandclinic.org This document was last reviewed on: 3/27/2008...#14136

MS A Chronic Illness and Depression


All it took was a comment from my son; "Why didn't you get more excited when I shared with you that we are having our first baby?"

One symptom of depression is Apathy ~ Lack of feeling or emotion. Before Multiple Sclerosis I had no problems with feelings or emotions. My kids new that I would be emotional over the littlest things.
Read the article below on Chronic Illness and Depression. 





Depression is common in people who have a chronic illness.




Chronic Illness and Depression

What is a chronic illness?A chronic illness is one that lasts for a very long time and usually cannot be cured completely. Examples of chronic illnesses include diabetes, heart disease, arthritis, kidney disease, HIV/AIDS, lupus, and multiple sclerosis. Many of these conditions can be improved through diet, exercise, and healthy living, in addition to medication.
Why is depression common in people who have a chronic illness?Depression is one of the most common complications of chronic illness. It is estimated that up to one-third of individuals with a serious medical condition experience symptoms of depression. People diagnosed with chronic illnesses must adjust to the demands of the illness as well as to its treatment. The illness may affect a person’s mobility and independence, and change the way a person lives, sees him- or herself, and/or relates to others. These requirements can be stressful and cause a certain amount of despair or sadness that is normal.
In some cases, having a chronic illness can trigger clinically significant depression, a potentially serious but treatable illness itself. The challenge for the doctor and the patient is to decide whether symptoms of depression are just a normal reaction to the stress of having a chronic medical condition, or so intense or disabling that they require additional specific antidepressant treatment.
Which long-term illnesses lead to depression?Any chronic condition can trigger depression, but the risk increases with the severity of the illness and how much disruption it causes in one’s life.
Depression caused by chronic illness can in turn aggravate the illness, causing a vicious cycle to develop. Depression is especially likely to occur when the illness is associated with pain, disability, or social isolation. Depression in turn can intensify pain, fatigue, and the self-doubt that can lead to avoidance of others.
The rate for depression occurring with other medical illnesses is quite high:
  • Heart attack: 40%-65%
  • Coronary artery disease (without heart attack): 18%-20%
  • Parkinson’s disease: 40%
  • Multiple sclerosis: 40%
  • Stroke: 10%-27%
  • Cancer: 25%
  • Diabetes: 25%
  • What are the symptoms of depression?Patients and their family members often overlook the symptoms of depression, assuming that feeling depressed is normal for someone struggling with a serious, chronic illness. Symptoms of depression such as fatigue, poor appetite, impaired concentration, and insomnia are also common features of chronic medical conditions, adding to the difficulty of deciding whether they are due to depression or to the underlying illness. When depression is present, it is extremely important to treat both the depression and the chronic medical illness at the same time.
    Common symptoms of depression include:
  • Depressed mood or loss of interest or pleasure in daily activities
  • Significant weight loss or weight gain
  • Sleep disturbances -- sleeping too much or not able to sleep
  • Problems with concentration
  • Apathy (lack of feeling or emotion)
  • Feelings of worthlessness or guilt
  • Fatigue or loss of energy
  • Repeated thoughts of death or suicide
  • What can be done to treat depression?Early diagnosis and treatment for depression can reduce distress as well as the risk of suicide when it exists. Those with a chronic medical condition who get treatment for co-existing depression often experience an improvement in their overall medical condition, achieve a better quality of life, and find it easier to follow through with their treatment plan.
    Sometimes improved treatment of the chronic medical condition will alleviate the symptoms of depression that it caused. When this is the case, specific treatment for depression is unnecessary. Some medications can cause depression; in these cases, the best thing to do is reduce or eliminate the offending agent. However, when depression becomes a separate problem, it should be treated on its own.
    The success of antidepressant treatment – like any other treatment – cannot be guaranteed, but the majority of individuals treated for depression will recover. Recovery is often more rapid and complete when both antidepressant medication and psychotherapy ("talk therapy") are combined. Many antidepressant medicines are available to treat depression. How these drugs work is not fully understood, but they affect brain chemicals that are believed to be involved in depression.
    Psychotherapy, or "therapy" for short, actually refers to a variety of techniques used to treat depression. Psychotherapy involves talking to a licensed professional who helps the depressed person:
  • Focus on the behaviors, emotions, and ideas that contribute to his or her depression.
  • Understand and identify the life problems or events--such as a major illness, a death in the family, the loss of a job, or a divorce--that contribute to depression and help them understand which aspects of those problems they may be able to solve or improve.
  • Regain a sense of control and pleasure in life.
  • Tips for coping with chronic illnessDepression, disability, and chronic illness form a vicious circle. Chronic illness can bring on bouts of depression, which, in turn, can lead to a rundown physical condition that interferes with successful treatment of the chronic condition.
    The following are some tips to help you better cope with a chronic illness:
  • Learn how to live with the physical effects of the illness.
  • Learn how to deal with the treatments.
  • Make sure there is clear communication with your doctors.
  • Try to maintain emotional balance to cope with negative feelings.
  • Try to maintain confidence and a positive self-image.
  • Get help as soon as symptoms of depression appear.
  • © Copyright 1995-2007 The Cleveland Clinic Foundation. All rights reserved

    This information is provided by the Cleveland Clinic and is not intended to replace the medical advice of your doctor or health care provider. Please consult your health care provider for advice about a specific medical condition. For additional written health information, please contact the Health Information Center at the Cleveland Clinic  (216) 444-3771 or toll-free  (800) 223-2273 extension 43771 or visit www.clevelandclinic.org/health/.

    http://www.clevelandclinic.org/health/health-info/docs/2200/2282.asp

    Saturday, February 9, 2013

    MS Dizziness

       dizziness~ A sensation of feeling off balance or lightheaded.

    Balance problems and in-coordination are common problems in people with multiple sclerosis (MS).
       When I have potty calls in the middle of the night I do not jump out of bed. I sit on the side of the bed for a few seconds then slowly stand up. Well this morning after slowly standing and starting to walk, my body headed off in a different direction which took me right into the wall. I tried righting myself only to keep walking into the dresser. Finally getting to the bathroom I was feeling light headed with no sense of balance. Getting back to bed was such a relief. I am still feeling that sense of off balance but not walking into the walls.

    Saturday, February 2, 2013

    Overcoming Mobility & Strength Obstacle



        I am Beverly and I have Multiple Sclerosis. I was diagnosed with this chronic illness in the Fall of 1997. I was angry that I was given this lifelong illness. I have decided to channel this anger into my website MS MobilityStrength Multiple Sclerosis
       Early in my diagnosis I was raising my children and working part time. I was dabbling with a website and then decided to get serious about it. The kids are all grown and out of the house. It is now just my husband, my Westie and me. I am on disability and have the time now to develop my website.
       
    I Know what I am doing!
    I Believe in what I am doing!
    I Love what I am doing!

       Please visit my website become a member to receive important updates and sign my guestbook to say HI! And to let me know what you think and ask any questions.
             
      MS MobilityStrength Multiple Sclerosis

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    Tuesday, January 29, 2013

    Enjoy a glass of wine!

       This is a little off the beaten path, but I want to share this totally delicious recipe with you.

       I love to cook but now dealing with MS I try to find simple and quick recipes. I was digging through all my recipes and found Betty Crocker best-loved casseroles. I purchased this mini recipe book on impulse located on the end cap of the check out lane in 2011. And now I will put it to good use.
       Finding a recipe using tuna I added the ingredients to my weekly shopping list. Well I made Tuna-Noodle Casserole and it was a hit! This recipe even had an extra boost- WINE.
    Yes I said wine!
    Well you have to taste the wine to be sure it is good!
        1/3 cup wine for the recipe and 1 glass for me. My husband just looked at me and said: "Please don't get looped before you finish cooking dinner!" Ha-Ha! Very funny!
       Well I can tell you I had fun making dinner that night and the casserole turned out fabulous.

    Check out the link below for the recipe:
    Tuna-Noodle Casserole



    Saturday, January 26, 2013

    Workout vs. Extra ZZZ’s?


    An advisor at Prevention says skimping on sleep effects how we burn calories.
    Read full article---
    Workout vs. Extra ZZZ’s?

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    Wednesday, January 23, 2013

    Where are the neighborhood Paperboys & Papergirls?

       I remember the days not long ago when the newspaper was delivered by a young boy or young girl. Gone are those days in NE Ohio.



       Our paper is now delivered in the wee hours of the morning unsuitable for young boys and girls to do. Young children had the opportunity to learn responsibility and at the same time get some good ole' exercise.
       I would like to see these paper delivery jobs given back to the youth of our neighborhoods. Could this possibly pull them away from the TV or the video games?
       Even though our paper is now being delivered by, in the newspapers mind, a RESPONSIBLE ADULT, we can't count on the paper being delivered by 6:00 am, or even being left in the paper box by our mailbox on the curb out of the elements.
       I have MS and can't go to the curb to retrieve my paper when there is snow on the ground. I sure miss the times when the paper was delivered right to my front door. I did not mind tipping the paper delivery boy/girl.
       Give the youth in our neighborhoods something to do when they get home from school. They might even be able to start saving money for that new bike!!!
      


    Thursday, January 17, 2013

    Self Esteem and MS


    This is me in high school. The early 70's! My boyfriend always sent me flowers, JUST BECAUSE!
     
         I did not have much self confidence in myself when I was younger. I was the oldest of four girls. I do recall when I was very young my Grandma asking me if I wanted something to snack on and remembering that I always had to have my mothers approval. Grandma would ask if I could make up my own mind? The answer was NO! My mother had a tight rope on us girls making us feel like we were not allowed or able to make our own decisions.
       Well long story short, I grew up being known as miss goody two shoes. My three sisters developed minds of their own and became free spirited! I was the one who took my mother serious. I knew she meant what she said.
       My lack of confidence and self esteem followed me all through school. I was an average student and knew that college was not for me. Fast forward~
       I married, it has been 35 yrs, and we have 3 adult children. I embarked on starting a craft business from home, when the kids were younger. Remember low confidence and self esteem. I was good at what I did and tried selling my creations at craft shows. I am not good at starting conversations with people, and when I do, according to my husband, I lack the ability to have total eye contact with the person I am talking to. This has also hindered me from developing new friendships.
      Since being diagnosed with MS in 1997, I promised myself that I would not hide in a corner because of this illness. Yes self esteem and confidence are things I work on everyday. I enjoy discussions with others about MS. I have the confidence needed in myself to share my life with MS.
      I have developed a website MS MobilityStrength Multiple Sclerosis and this Blog: My World of MS where I share with you all that I can about MS.
      I may still lack some self esteem, but I like myself and who I have become because of my diagnosis of Multiple Sclerosis.